Neon

Sixth Annual Summit - February 26, 2020 *Austin, Texas* The meeting was held in conjunction with the Texas Collaborative for Healthy Mothers and Babies, at the AT&T Executive Education and Conference Center in Austin, Texas. Meeting Summary
12:30 - 1:00	Registration and Welcome by Alice Gong. MD, NEON Executive Committee; Professor of Pediatrics and Director, UT Health San Antonio PREMIEre Program
1:00 - 2:00	Cerebral Palsy 2020 presented by Jan Brunstrom-Hernandez, MD, One CP Place, Plano, Texas (via Zoom). Objectives: 1. Define the term cerebral palsy and describe the motor phenotypes. 2. Be able to describe the five levels of the Gross Motor Function Classification System and discuss the importance of the GMFCS in the overall management of cerebral palsy. 3. Name at least 3 common neurodevelopmental co-morbidities, orthopedic consequences, and associated health impairments of cerebral palsy. 4. Discuss similarities and differences in management of cerebral palsy for children of different ages. Presentation (78 Mb)
2:00 - 2:45	NEON Member Program Presentations Member groups presented what their programs are doing on the path for early identification of cerebral palsy. The following individuals presented information about their programs (see links to the PowerPoints) in this order: Dr. Cathi Roberts, Dallas Developmental Pediatric Services Dr. Mario Fiero & Dr. Christine Aune, San Antonio Pediatric Developmental Services Dr. Roy Heyne, THRIVE Program–Children’s Health-Children’s Medical Center Dallas and UT Southwestern Medical Center Dr. Yvette Johnson, NEST Developmental Follow-up at Cook Children’s/Ft. Worth Dr. Alice Gong, UT Health San Antonio PREMIEre Program (presentation) \| Program Descripiton Website Dr. Sydney Kometani, Austin’s First Steps High Risk Follow-up Clinic (slides provided but not presented at the meeting)
2:45 - 3:15	Break
3:15 - 4:00	Group Discussion NEON groups reviewed processes and discussed performance measures to come up with a plan to move forward including early identification and sharing of de-identified data.
4:00 - 5:00	Interventions to Promote Neurodevelopmental Recovery for High-risk Infants in the First Year presented by Nathalie Maitre, MD, PhD, Director, NICU Follow-Up Clinic, Nationwide Children’s/Columbus, Ohio (via Zoom). Objectives: 1. Discuss safety concerns unique to the developmental challenges of high-risk infants 2. Review the current state of systematic evidence for early intervention effectiveness in the first year 3. Understand the mechanisms underlying new interventions for infants with CP Presentation to be published when available.
5:00 - 5:15	Closing Comments / Adjournment
2:00 - 2:15	Questions
Conference Record	Printer-friendly agenda List of Attendees Meeting Summary